April 23, 2025 • Estimated Reading Time: 1 minute
Our research summaries provide insights into the latest scientific developments. Check back in our next newsletter for updates.
On March 15, Congress enacted legislation that drastically reduced funding for the Department of Defense Congressionally Directed Medical Research Program (CDMRP). Funding has been cut by 57%, from $1.5 billion to $650 million, impacting many critical research programs including “Hereditary Ataxia.” CDMRP has been instrumental in advancing Ataxia research, recommending seventeen grants for funding in the last three years.This research program is designed to ensure the health and well-being of the people who serve in the Armed Services as well as the American public. Call on Congress to restore this vital funding! You can use the link below and personalize to express how meaningful the CDMRP is to you and Ataxia research!Contact your representatives here:
On March 15, Congress enacted legislation that drastically reduced funding for the Department of Defense Congressionally Directed Medical Research Program (CDMRP). Funding has been cut by 57%, from $1.5 billion to $650 million, impacting many critical research programs including “Hereditary Ataxia.” CDMRP has been instrumental in advancing ataxia research, recommending seventeen grants for funding in the last three years.This research program is designed to ensure the health and well-being of the men and women who serve in the Armed Services as well as the American public. Call on Congress to restore this vital funding! You can use this link: and personalize to express how meaningful the CDMRP is to you and ataxia research!#restoreCDMRP
Here is a blog from our friend, Clare."Late onset FA is a strange mix of feeling sad about the diagnosis and worrying about the future, and feeling happy that I had such a great life with no limitations until now. You nearly feel a little guilty! I was very sporty when I was younger and had a great social life. My life has definitely become smaller. I used to attend a lot of concerts and now it is much more of an ordeal – I would get anxious about it rather than really looking forward to it. Thankfully I am still walking (just about!).BUT…… I am very positive! I know there is so much research being done into Friedreich’s ataxia and other neurological conditions. So I am very hopeful that the lives of people with FA and other ataxias will be changed for the better!"Read the full story here: https://ow.ly/iUg450VzYTA
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