Weekly Spotlight - 12.12.24

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Latest News

Activity Levels, 2 Genes Tied to Inflammation Altered in FA Patients

Researchers found that people with Friedreich's ataxia have altered activity levels of two genes related to inflammation, which could contribute to the disease's progression. Understanding these genetic changes may help develop new treatments targeting inflammation to slow down the disease.

Parenting a Child with FA: Redefining Priorities and Finding Joy Despite Challenges

A parent with Friedreich's ataxia shares how the condition has forced them to redefine their priorities and adapt to new challenges in parenting, emphasizing the importance of self-care, support systems, and finding joy in everyday moments despite the physical limitations.

Responding to "How Are You?" When Living with a Chronic Condition

When people ask how you're doing, it can be challenging to respond, especially with a condition like Friedreich's ataxia. This article offers tips on how to handle such questions, suggesting honest but brief responses, setting boundaries, and redirecting the conversation to more positive topics. It emphasizes the importance of self-care and managing emotional well-being in these interactions.